Please join us for a special gathering of patients with epidermolysis bullosa (EB) and their families, hosted by the Epidermolysis Bullosa Multidisciplinary Clinic at Children’s Hospital of Philadelphia.
This year’s event will be held at the Please Touch Museum, a wonderful, interactive children’s museum in Philadelphia, and will include many activities, food and fun! For this special event, the museum is being adapted to provide a more relaxed environment for children and teens with autism, learning disabilities, and other sensory or communication needs.
You’ll be able to connect with other EB families from CHOP – as well as many of our EB providers – in this private, casual setting. Tickets are limited, so sign up today!
Please note this event is only for CHOP patients with epidermolysis bullosa and their families.
RSVP
Please RSVP by Sunday, Oct. 1, 2023.
Parking
Free parking is available on the street in front of the museum and in the museum’s gated lot. If you park in the lot, please see a CHOP staff member to validate your ticket before leaving.
More information
If you have any questions or for more information, please contact Valerie Bertele at 215-590-1930 or ebclinic@chop.edu.
